The Iron Disorders Institute Guide to Hemochromatosis

By | March 10, 2018
The Iron Disorders Institute Guide to Hemochromatosis

More than one million Americans suffer from Hemochromatosis, and most have to suffer through misdiagnoses and multiple doctor visits before finding the right treatment. If left untreated, Hemochromatosis can lead to heart attack, diabetes, cirrhosis, or cancer.

Written by top medical researchers and experts, this comprehensive and reliable guide dispels the myths, explains the basic science behind the disease, and provides clues for diagnosis. It also includes inspiring case studies, treatment options, common questions, advocacy resources, and more.

The number-one bestselling and most comprehensive guide, now updated with the latest scientific research

  • The popular first edition has net sales of more than 11,000 copies; second edition is updated with the latest research
  • More than one million Americans suffer from classic Hemochromatosis
  • The CDC estimates people with Hemochromatosis are misdiagnosed 67% of the time and see an average of three doctors before a successful diagnosis

  • Used Book in Good Condition

3 thoughts on “The Iron Disorders Institute Guide to Hemochromatosis

  1. J. C. C.
    6 of 6 people found the following review helpful
    5.0 out of 5 stars
    This is a must read if you have the disorder or have a family member that does., January 14, 2014
    J. C. C. (Alabama) –

    Verified Purchase(What’s this?)
    There is good information on the internet about this disorder but much of it is rather vague or seems to somewhat contradict itself among the different sources. This book is a one stop shop written by the authorities on the subject. It is all of the information you always wanted to know but were to afraid to ask. It is presented well and it is very thorough. Sure some of the information is rather technical but it is a great reference that I find myself going back to over and over. So if you don’t get it all on the first read, give it a week and read it again. If you take the time to read this book cover to cover you will probably know much more about the disorder than the majority if the Doctors out there and that is a real blessing and a same at the same time. This disorder is a silent killer. After reading this book, I now have regular “informed” discussions with my Doctor about my situation and treatment plan. It also opened my eyes that not all people have the same classic symptoms that are described elsewhere, many of the minor symptoms presented in the book fit my situation exactly and my Doctor never made the correlation. I am also convinced now that my Grandmother died of this disorder and we never had a clue. The chapter with the case histories from people who have this disorder and their journey trying to work with doctors to get a handle on their health issues was worth the money alone.
  2. radrevdwh
    3 of 3 people found the following review helpful
    5.0 out of 5 stars
    Comprehensive guideline on HH, October 12, 2013
    radrevdwh (Coeur d’Alene, Idaho) –

    Verified Purchase(What’s this?)
    This review is from: The Iron Disorders Institute Guide to Hemochromatosis (Paperback)
    Hereditary Hemochromatosis is to humans as iron filings are to your DVD player. In both cases, electrical signals are attenuated or shunted to ground. Tests for Iron overload need to be a priority for any northern european male who is hypothyroid. Untreated, Hemochromatosis will eventually kill as a consequence to congestive heart failure.

    I tested genetically positive for Hereditary Hemochromatosis, DX with low heart rate, blood pressure, course liver, enlarged spleen, arrhythmia, Central Sleep Apnea (mixed) in which my brain fails to consistently send my diaphragm the needed signal to contract so I will breathe. HH also causes gout due to impaired metabolism of uric acid until it is eliminated.

    My treatment began in June. Untreated, odds of me living another two years are poor. With the organ damage already incurred, I might live another five years.
    I haven’t given up yet and am augmenting my weekly phlebotomy with adaptogens, numerous antioxidants, while avoiding many of the side-effect laden pharmaceuticals.

    As for thyroid, I was doing well on T3 only with a weekly dose of cytomel for bone health. I have transitioned over the summer to 100 mcg of synthroid. In November, my throid panel will be tested for adequate conversion to Free T3. In April of 2012, my reverse T3 was 863. A month later without further meds, it was still 179 and dominant per the RT3 syndrome calculation. I felt lousy then and feel lousy today. I have another month to go.

  3. ange murtha
    15 of 15 people found the following review helpful
    5.0 out of 5 stars
    the iron disorders institute guide to hemochromatosis, December 18, 2010

    Verified Purchase(What’s this?)
    This review is from: The Iron Disorders Institute Guide to Hemochromatosis (Paperback)
    Have learnt so much from this book, and i needed to learn so much as well as alot of the medical professionals in NZ dont seem to know alot about it. I am now 29 years old, and have suffered from chronic fatigue as long as i can remember, i always thought, its just me, its just who i am, my mates always used to laugh and say, “your just born tired”. Id be right as rain one minute and full of life and then the next second wanting to sleep for a week, up and down like a yo yo. Then came the nausea, halusinations, shortness of breath, i never smoked, have been a vegetarian since the age of 15, and still was the unfitest out of all us on the team.
    I went backwards and forwards to doctors over 3 years, the nausea and tiredness was getting so hard to bear i would break down and cry and have to leave work in some cases. Finally one of the doctors said we will get some blood work done on you, my iron levels were high, come back in a few months time and we will see if they go down.

    From there i got on the internet searching for an answer, getting sicker and sicker, i found hemochromatosis, further investigaions and searches via the internet i asked to see a specialist and asked to be tested for it along with a list of all my symtoms. His comment, you wont have that. He did test for it though after i pushed him to along with a whole list of other things, my test results came back positive for C282Y homozygote, thats the mutation on both chromosomes, he gave me a piece of paper and said here, go get bleed (i had to learn everything out myself, i nearly fainted and vomited after my first pint of blood, no warning given of what to do before or after). I got my sister to get tested also, she is C282Y carrier. It was too late for my dad who i am sure would have had it but i will never know, he died when he was 54 years old of a heart attack and his father also died around the same age of a heart attack. I am in the process of trying to get dads brothers and sisters tested for it too, but its hard, sometimes people (even family) dont want to know.

    Since finding out over 2 years i have had 14 pints of blood taken to get my iron down to normal levels. My extreme fatigue has eased down to just getting tired every now and then (like any other person), i can do way more without getting too short of breath, the nausea has eased slightly but is still occuring every now and then and my haulicinations have nearly all but gone. If it wasnt for the internet i would have ended up like dad, a short quick life.
    I have learnt so much form this book, its very hard living in a place where not much is known about a certain disease, but with knowledge you get stonger and can also help other people, maybe even save a few lives, wish i had of found out earlier, i may still have my dad with me instead of him leaving me when i was only 18years old, i guess we will never know.

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