Tag Archives: Rare

'I found out by accident that I had a rare cancer' – GAA coach who believes in living the best life he can

Tom says he lives in the now and has a great quality of life at the age of 72. Pic: Liam Burke/Press 22 ‘I found out by accident that I had a rare cancer’ – GAA coach who believes in living the best life he can Independent.ie Tom O’Donoghue will tell you that he’s “one… Read More »

With Gamifant launch rolling, Sobi unveils more data backing the rare disease med

SAN DIEGO—Armed with last month’s FDA approval, Sobi is rolling out its newly minted rare disease drug Gamifant with a small, targeted sales force, and Monday it unveiled more of the data that won the agency’s favor in the first place. In a phase 2/3 trial of Gamifant in primary haemophagocytic lymphohistiocytosis (HLH), 64.7% of… Read More »

Cases of rare, polio-like condition in U.S. highest since 2016

(Reuters) – A rare, polio-like condition has sickened 116 people in the United States so far this year, the highest number of cases since 2016, the U.S. Centers for Disease Control and Prevention said on Monday. FILE PHOTO: A general view of the Centers for Disease Control and Prevention (CDC) headquarters in Atlanta, Georgia September… Read More »